Scores of virtual events are afoot around the world to mark Rare Disease Day 2021 on Feb. 28. The…
Articles by Mary Chapman
International Epilepsy Day (IED), falling on Feb. 8 this year, calls attention to the needs of the roughly 50 million…
While progress was made last year on newborn screening and other policy issues critical to rare disease patients, a “…
Caring for a loved one with a rare disease, especially during these uncertain times, demands significant time, attention, patience, and…
The National Organization for Rare Disorders (NORD) is seeking individuals willing to share real-life experiences with rare diseases to…
To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients…
National Epilepsy Awareness Month is underway, with a variety of events and activities aimed at calling attention to diseases…
A photo of a bespectacled young boy, his red baseball cap slightly askew as he  enjoys time outside, will be…
Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their…
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare…