Brian is a caregiver columnist along with his wife, Jendi, writing about life caring for their son, Little Brian. Little Brian is currently diagnosed with Lennox-Gastaut syndrome, which started as infantile spasms at 8 months of age in 2015. They live in the Tampa Bay area of Florida and love the sunshine. Although Lennox-Gastaut syndrome is devastating and without a cure, each day is a new day and should be cherished, no matter how difficult it may be.
Brian’s birthday party is on Sunday, and he turns 6 years old! I can’t believe how quickly the time has passed. I remember holding my son shortly after he ... Read more
When Brian’s seizures returned as Lennox-Gastaut syndrome (LGS) after his initial bout with infantile spasms, the blow was crushing. After Jendi went through a very difficult childhood, I was ... Read more
When diagnosed with Lennox-Gastaut syndrome, our son, Brian, was still developing normally. Every day built upon the previous day, which was amazing to watch. His episodes consisted of dozens ... Read more
As an old episode of the TV series “The Office” plays in the living room, my daughter, Coralynn, is falling asleep on the couch. Her mom, Jendi, is locked ... Read more
On my son Brian’s first day of kindergarten, he woke up nicely, babbling to himself in his bed. When I heard him singing to himself, I jumped out of ... Read more
After we finished breakfast, Brian was freed from his eating chair (a donated wheelchair with a seatbelt and removable tray). As I was brainstorming fun morning activities with his ... Read more
My son Brian’s class photos are always great. He doesn’t normally respond to any verbal instructions, so getting him to sit still, look at the camera, and smile willingly ... Read more
On a “normal” morning, the house would be quiet, aside from the soft humming of the appliances and the clicking of meandering dog paws stepping on the tile floor. ... Read more
We use cookies to ensure that we give you the best experience on our website. If you continue to use this site we will assume consent.OkNoRead more
You can revoke your consent any time using the Revoke consent button. Revoke Cookie Consent
