Brian is a caregiver columnist along with his wife, Jendi, writing about life caring for their son, Little Brian. Little Brian is currently diagnosed with Lennox-Gastaut syndrome, which started as infantile spasms at 8 months of age in 2015. They live in the Tampa Bay area of Florida and love the sunshine. Although Lennox-Gastaut syndrome is devastating and without a cure, each day is a new day and should be cherished, no matter how difficult it may be.
When Brian’s seizures returned as Lennox-Gastaut syndrome (LGS) after his initial bout with infantile spasms, the blow was crushing. After Jendi went through a very difficult childhood, I was ... Read more
When diagnosed with Lennox-Gastaut syndrome, our son, Brian, was still developing normally. Every day built upon the previous day, which was amazing to watch. His episodes consisted of dozens ... Read more