Eurordis, a Paris-based coalition of national rare disease associations across Europe, hosted its first all-virtual conference, bringing some 1,500 delegates from ... Read more
The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the COVID-19 outbreak is affecting ... Read more
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community who are ... Read more
