Use of Fintepla (fenfluramine), an approved oral therapy for Lennox-Gastaut syndrome (LGS), was found to safely reduce convulsive seizures in a small group of adults with hard-to-treat developmental and epileptic encephalopathy, a severe type…
Latest News
The U.S. Food and Drug Administration (FDA) has approved Lamlique, a ready-to-use oral liquid formulation of the antiseizure medication lamotrigine. Like other immediate-release lamotrigine products, Lamlique is indicated for use as an add-on treatment…
Vagus nerve stimulation (VNS), a treatment that uses a small, implanted device to deliver electrical signals to the vagus nerve, was linked to fewer seizures in many children with …
Caregivers of people with Lennox-Gastaut syndrome (LGS) in focus groups most frequently cited knowledge gaps on the part of physicians as a barrier to accessing care and information. Access to care, access to information,…
A checklist based on international diagnostic criteria, developed by specialists in Europe, may help doctors identify Lennox-Gastaut syndrome (LGS) earlier and support further evaluation when a…
People who meet the clinical criteria for Lennox-Gastaut syndrome (LGS) may have substantial differences in their seizure patterns, brain activity, and developmental impairment, and some severely affected patients may not meet all formal electroencephalogram (EEG)…
Community Perspectives
My son, Jeff, was diagnosed with Lennox-Gastaut syndrome, a rare form of epilepsy, when he was about 9. After he grew up, he lived at home with my husband and me for a few…
Unfortunately, people with disabilities are not always treated with kindness. My late son, Jeff, who was diagnosed with Lennox-Gastaut syndrome (LGS) at 8 years old and passed away two years ago at 51, encountered…
After my son, Jeff, was diagnosed with Lennox-Gastaut syndrome (LGS) in 1980, my main objective was to keep his life as normal as possible. Jeff loved all sports. He was a very active boy,…
Things don’t always go how you expect them to. My introduction to Lennox-Gastaut syndrome (LGS) sadly came through my son Jeff’s diagnosis at age 8 in November 1980. At the time, it was…
Last week, my son, Brian, started sixth grade. With the elementary school years officially behind us, it is difficult for me to fathom how quickly time has passed. My little boy is now taller than…
Caring for a loved one with Lennox-Gastaut syndrome (LGS), as we do with our 11-year-old son, Brian, comes with many challenges and limitations. Simple outings that many people take for granted, like taking the…
