The World Keeps on Turning, Even in the Midst of Tragedy
When Brian’s seizures returned as Lennox-Gastaut syndrome (LGS) after his initial bout with infantile spasms, the blow was crushing. After Jendi went through a ... Read more
Updates
-
-
UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner
A photo of a bespectacled young boy, his red baseball cap slightly askew as he enjoys time outside, will be featured on the front ... Read more -
LGS Caregivers Need a Little TLC, Too
With Lennox-Gastaut syndrome (LGS), you don’t get lucky for very long. The honeymoon phase we enjoyed over the summer has passed, and we’re right ... Read more -
Epidiolex Triggers Lithium Toxicity in Boy With LGS, Case Study Reports
Epidiolex (cannabidiol) treatment led to lithium toxicity in a boy with Lennox-Gastaut syndrome (LGS), demonstrating a previously unknown, harmful interaction between these two therapies, a ... Read more -
Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say
A majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience positive, and many would like the option of continuing its ... Read more
-
Australian TGA Approves Epidyolex for Treating Seizures Associated with LGS
The Australian Therapeutic Goods Administration (TGA) has approved Epidyolex (cannabidiol) as a treatment for ... -
Our 5 LGS Must-haves to Help Parent Our Son
Lennox-Gastaut syndrome (LGS) is without a doubt the most daunting experience I’ve ever faced. ... -
Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos
Same But Different, a nonprofit U.K. group that uses art for social change, is ... -
Eton Pharmaceuticals Submits New Drug Application for Topiramate Oral Solution
Eton Pharmaceuticals has submitted a new drug application (NDA) for topiramate oral solution — an ... -
Epidyolex Approved in Scotland to Treat LGS Patients, 2 and Older
The Scottish Medicines Council (SMC) approved Epidyolex (cannabidiol), combined with the anti-epileptic medicine clobazam, ... -
As Brian’s Symptoms Worsen, It’s Getting Harder to Manage
When diagnosed with Lennox-Gastaut syndrome, our son, Brian, was still developing normally. Every day ...
Subscribe to our mailing list
Get regular updates delivered to your email box.
Thanks! Please check your email for a confirmation email.