Vagus nerve stimulation (VNS), a treatment that uses a small, implanted device to deliver electrical signals to the vagus nerve, was linked to fewer seizures in many children with …
Latest News
Caregivers of people with Lennox-Gastaut syndrome (LGS) in focus groups most frequently cited knowledge gaps on the part of physicians as a barrier to accessing care and information. Access to care, access to information,…
A checklist based on international diagnostic criteria, developed by specialists in Europe, may help doctors identify Lennox-Gastaut syndrome (LGS) earlier and support further evaluation when a…
People who meet the clinical criteria for Lennox-Gastaut syndrome (LGS) may have substantial differences in their seizure patterns, brain activity, and developmental impairment, and some severely affected patients may not meet all formal electroencephalogram (EEG)…
Questionnaires used in research to assess behavior, communication, and quality of life in people with Lennox-Gastaut syndrome (LGS) may not always capture the concerns that matter most to patients and their families, a study…
Fintepla (fenfluramine) can rapidly reduce seizure frequency in people with Lennox–Gastaut syndrome (LGS), with the greatest benefits typically appearing after a few months of treatment and common side effects often becoming less noticeable…
Community Perspectives
Unfortunately, people with disabilities are not always treated with kindness. My late son, Jeff, who was diagnosed with Lennox-Gastaut syndrome (LGS) at 8 years old and passed away two years ago at 51, encountered…
After my son, Jeff, was diagnosed with Lennox-Gastaut syndrome (LGS) in 1980, my main objective was to keep his life as normal as possible. Jeff loved all sports. He was a very active boy,…
Things don’t always go how you expect them to. My introduction to Lennox-Gastaut syndrome (LGS) sadly came through my son Jeff’s diagnosis at age 8 in November 1980. At the time, it was…
Last week, my son, Brian, started sixth grade. With the elementary school years officially behind us, it is difficult for me to fathom how quickly time has passed. My little boy is now taller than…
Caring for a loved one with Lennox-Gastaut syndrome (LGS), as we do with our 11-year-old son, Brian, comes with many challenges and limitations. Simple outings that many people take for granted, like taking the…
Although my 11-year-old son, little Brian, has Lennox-Gastaut syndrome and is nonverbal, he lives and behaves like a royal prince. His home is his kingdom, and with me as his personal bodyguard, we march…
