A study showed that characteristic brain wave patterns used to diagnose Lennox-Gastaut syndrome (LGS) emerge gradually during childhood, rather than all at once, potentially complicating early diagnosis. Researchers in the U.K. reviewed electroencephalogram (EEG)…
Incomplete or inconsistent documentation of brain activity, seizure types, and other key symptoms in medical records can make it difficult to accurately identify people with Lennox-Gastaut syndrome (LGS), a rare and severe form of…
This Sunday, advocates around the world will be coming together to raise awareness about Lennox-Gastaut syndrome (LGS) as part of International LGS Awareness Day. For this year’s awareness day on Nov. 1, the…
About 70% of people with Lennox-Gastaut syndrome (LGS) who underwent a corpus callosotomy, a surgical procedure to sever the nerves that connect the brain’s two hemispheres, achieved at least a 50% reduction in seizures.
When a child has Lennox-Gastaut Syndrome (LGS), it becomes a challenge for the entire family. Parents, siblings, grandparents, and even friends and employers need to learn how to manage it. “An easier…
Use of Fintepla (fenfluramine), an approved oral therapy for Lennox-Gastaut syndrome (LGS), was found to safely reduce convulsive seizures in a small group of adults with hard-to-treat developmental and epileptic encephalopathy, a severe type…
I’ve learned that making plans when your child lives with Lennox-Gastaut syndrome (LGS) takes flexibility, a good sense of humor, and maybe a crystal ball. If anyone knows where I can find a reliable…
November is an emotional time for me as a mom whose son lived with epilepsy for more than 40 years. In honor of National Epilepsy Awareness Month, our family and friends participate in walks and…
Nobody dreams of hearing that their baby has a catastrophic form of epilepsy. I certainly didn’t. My daughter, Lola, was just 4 months old when she began experiencing infantile spasms. At an age when…
Like many others with rare diseases, my late son, Jeff, faced frequent medication changes to help him function as best he could. Jeff had Lennox-Gastaut syndrome (LGS), and his neurologist was always trying to…
My son, Jeff, was diagnosed with Lennox-Gastaut syndrome, a rare form of epilepsy, when he was about 9. After he grew up, he lived at home with my husband and me for a few…
Unfortunately, people with disabilities are not always treated with kindness. My late son, Jeff, who was diagnosed with Lennox-Gastaut syndrome (LGS) at 8 years old and passed away two years ago at 51, encountered…
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