Brian’s birthday party is on Sunday, and he turns 6 years old! I can’t believe how quickly the time has passed. I remember holding my son shortly after he ... Read more
In the spirit of Halloween and the constant uncertainties in our life, I had to revisit the first risk I took for my boy, Brian. I was in the ... Read more
When Brian’s seizures returned as Lennox-Gastaut syndrome (LGS) after his initial bout with infantile spasms, the blow was crushing. After Jendi went through a very difficult childhood, I was ... Read more
With Lennox-Gastaut syndrome (LGS), you don’t get lucky for very long. The honeymoon phase we enjoyed over the summer has passed, and we’re right back into unknown territory. What ... Read more
Lennox-Gastaut syndrome (LGS) is without a doubt the most daunting experience I’ve ever faced. Time and time again, the seizures outsmart us, leaving us scrambling to find the next ... Read more
When diagnosed with Lennox-Gastaut syndrome, our son, Brian, was still developing normally. Every day built upon the previous day, which was amazing to watch. His episodes consisted of dozens ... Read more
Lucky 7/11 My husband and I just celebrated our “7/11”: seven years married and 11 together. We often receive props for being the “model couple.” In our circle of ... Read more
As an old episode of the TV series “The Office” plays in the living room, my daughter, Coralynn, is falling asleep on the couch. Her mom, Jendi, is locked ... Read more
It’s been a long five months in quarantine. Teaching virtually while supporting my own two children and their virtual schooling was a challenge, to say the least. Doable? Yes. ... Read more
On my son Brian’s first day of kindergarten, he woke up nicely, babbling to himself in his bed. When I heard him singing to himself, I jumped out of ... Read more
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