Caring for a loved one with Lennox-Gastaut syndrome (LGS), as we do with our 11-year-old son, Brian, comes with…
Brian Solka
Brian writes about caring for his son, Little Brian, who was diagnosed with Lennox-Gastaut syndrome in 2015 after experiencing infantile spasms that began at 8 months of age. Brian lives in the Tampa Bay, Florida, area with Little Brian's mom, Jendi, and their two daughters. Although Lennox-Gastaut syndrome is devastating and without a cure, Little Brian's smile reminds them each day should be cherished, no matter how difficult it may be.
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Articles by Brian Solka
Although my 11-year-old son, little Brian, has Lennox-Gastaut syndrome and is nonverbal, he lives and behaves like a royal…
As I sit in rush-hour traffic, a hot Florida sun beams brightly through my windshield. Drivers around me jostle for…
Little Brian is awesome. As I take this time to reflect on the totality of the life that currently exists…
As we packed into the car, our daughter, Coralynn, was excited. The holidays were firmly behind us, and today was…
As I approach the reception desk, my heart is beating quickly. My forehead muscles are tense from the prolonged furrowing…
Brian’s birthday party is on Sunday, and he turns 6 years old! I can’t believe how quickly the time has…
When Brian’s seizures returned as Lennox-Gastaut syndrome (LGS) after his initial bout with infantile spasms, the blow was crushing. After…
When diagnosed with Lennox-Gastaut syndrome, our son, Brian, was still developing normally. Every day built upon the previous day, which…
As an old episode of the TV series “The Office” plays in the living room, my daughter, Coralynn, is falling…