ASAP care with LGS:
Protecting your child’s future
The sooner LGS is managed effectively, the more opportunities there may be to protect your child’s long-term health, development, and independence. Use this guide to learn when to adjust treatments, build the right care team, create safety plans, navigate insurance hurdles, and take practical steps that support your child’s future.
Watch: Advocate, strategist, partner
Creating a seizure safety plan for home, school, and everyday life
Fact-Checked By Joana Carvalho, PhD
Having a detailed, up-to-date seizure action plan — shared with all responsible adults who may be supervising — will help ensure your child receives appropriate care in any setting.
Who fits in your LGS multidisciplinary team, and why are they important to your child's care? Find out here.
Research says siblings of children with epilepsy often experience emotional wounds that parents do not recognize. But it also suggests strategies that may relieve these burdens.
How LGS treatment adherence shapes your child’s long-term health
Fact-Checked By Joana Carvalho, PhD
Learn the ways that sticking to your child's LGS therapy plan affects not only today's health, but tomorrow's quality of life.
LGS is a drug-resistant epilepsy that evolves over time, so it's likely that at some point, your child's treatment plan will require some changes. Learn to know when that time has arrived.
5 things I do to make my child’s care team move faster in treating LGS
Fact-Checked By Joana Carvalho, PhD
Brian Solka, whose son has LGS, shares his playbook for getting doctors to move faster in responding to his concerns.
Recent Posts
- Building the right LGS care team: Who you need and when
- Creating a seizure safety plan for home, school, and everyday life
- Helping siblings understand and adjust to life with LGS
- How LGS treatment adherence shapes your child’s long-term health
- 5 things I do to make my child’s care team move faster in treating LGS