ASAP care with LGS:
Protecting your child’s future
The sooner LGS is managed effectively, the more opportunities there may be to protect your child’s long-term health, development, and independence. Use this guide to learn when to adjust treatments, build the right care team, create safety plans, navigate insurance hurdles, and take practical steps that support your child’s future.
Managing the physical limitations, daily assistance, and emergency care needs of a child with Lennox-Gastaut syndrome (LGS) can feel like a full-time job. Add the stress of navigating insurance for rare disease in the U.S., and your daily load can feel impossible. If you care for a child or…
Service dogs can help children with Lennox-Gastaut syndrome by responding to seizures and supporting daily activities. Learn about training, costs, and care responsibilities to decide whether one is right for your family.
Practical home modifications can help protect children with Lennox-Gastaut syndrome from injuries during seizures. Learn how to create safer living, bathing, and sleeping spaces.
Nighttime seizures can make bedtime especially stressful for families affected by LGS Explore practical ways to improve sleep safety, from seizure-monitoring devices and bedroom modifications to calming routines, healthy sleep habits, and better overnight tracking.
Having a detailed, up-to-date seizure action plan — shared with all responsible adults who may be supervising — will help ensure your child receives appropriate care in any setting.
Who fits in your LGS multidisciplinary team, and why are they important to your child's care? Find out here.
Research says siblings of children with epilepsy often experience emotional wounds that parents do not recognize. But it also suggests strategies that may relieve these burdens.
Learn the ways that sticking to your child's LGS therapy plan affects not only today's health, but tomorrow's quality of life.
LGS is a drug-resistant epilepsy that evolves over time, so it's likely that at some point, your child's treatment plan will require some changes. Learn to know when that time has arrived.
Brian Solka, whose son has LGS, shares his playbook for getting doctors to move faster in responding to his concerns.