Advocate, strategist, partner:
Owning your role in LGS care

Bridging the gaps in shared LGS care

James W. Wheless, MD, explains how communication can help families improve coordination of complex LGS care.

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About the Series

We listened to the conversations happening across the Lennox-Gastaut syndrome community to uncover the questions and challenges that matter most. In this video series, community members share their hard-won wisdom for navigating healthcare as a caregiver for someone with LGS.

Episodes

How to balance LGS advocacy with preserving trust

Colleen Jendreas explains her methods for advocating for her son and building his LGS care team.

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Bridging the gaps in shared LGS care

James W. Wheless, MD, explains how communication can help families improve coordination of complex LGS care.

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How to ask about new or different LGS treatment options

James W. Wheless, MD, discusses how families affected by LGS can talk with their healthcare team about treatments.

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Balancing seizure control with quality of life in LGS

James W. Wheless, MD, explains why balancing seizure control and quality of life is a key goal in LGS care.

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Bringing hard, objective seizure data to LGS doctor visits

Colleen Jendreas shares how keeping a color-coded calendar of her son's seizures has helped support conversations with his LGS care team.

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How to handle disagreement with your LGS doctor

Brian Solka shares how living with LGS has shaped his approach to healthcare, emphasizing the importance of respectful communication with doctors.

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