Advocate, strategist, partner:
Owning your role in LGS care
Learning LGS care by ‘sticking your feet in the fire’
Brian Solka discusses how to manage the inevitable mistakes a caregiver experiences over the course of their child’s treatment.
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Learning LGS care by ‘sticking your feet in the fire’
Brian Solka discusses how to manage the inevitable mistakes a caregiver experiences over the course of their child’s treatment.
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Sometimes a caregiver has to push back on an LGS treatment decision
Colleen Jendreas describes how she convinced her son’s doctor to try a full reset on his LGS treatment in order to find a more effective path.
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Are you maximizing your loved one’s LGS care potential?
James Wheless, MD, discusses methods for how doctors and caregivers and collaborate to improve care for their loved one.
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How to balance LGS advocacy with preserving trust
Colleen Jendreas explains her methods for advocating for her son and building his LGS care team.
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Bridging the gaps in shared LGS care
James W. Wheless, MD, explains how communication can help families improve coordination of complex LGS care.
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How to ask about new or different LGS treatment options
James W. Wheless, MD, discusses how families affected by LGS can talk with their healthcare team about treatments.
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Balancing seizure control with quality of life in LGS
James W. Wheless, MD, explains why balancing seizure control and quality of life is a key goal in LGS care.
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Bringing hard, objective seizure data to LGS doctor visits
Colleen Jendreas shares how keeping a color-coded calendar of her son's seizures has helped support conversations with his LGS care team.
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How to handle disagreement with your LGS doctor
Brian Solka shares how living with LGS has shaped his approach to healthcare, emphasizing the importance of respectful communication with doctors.
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