Advocate, strategist, partner:
Owning your role in LGS care

Bringing hard, objective seizure data to LGS doctor visits

Colleen Jendreas shares how keeping a color-coded calendar of her son's seizures has helped support conversations with his LGS care team.

Watch Video

About the Series

We listened to the conversations happening across the Lennox-Gastaut syndrome community to uncover the questions and challenges that matter most. In this video series, community members share their hard-won wisdom for navigating healthcare as a caregiver for someone with LGS.

Episodes

How to ask about new or different LGS treatment options

James W. Wheless, MD, discusses how families affected by LGS can talk with their healthcare team about treatments.

Watch Video

Balancing seizure control with quality of life in LGS

James W. Wheless, MD, explains why balancing seizure control and quality of life is a key goal in LGS care.

Watch Video

Bringing hard, objective seizure data to LGS doctor visits

Colleen Jendreas shares how keeping a color-coded calendar of her son's seizures has helped support conversations with his LGS care team.

Watch Video

How to handle disagreement with your LGS doctor

Brian Solka shares how living with LGS has shaped his approach to healthcare, emphasizing the importance of respectful communication with doctors.

Watch Video