Colleen Jendreas shares how keeping a color-coded calendar of her son Owen’s seizures, medication changes, and overall well-being has helped identify patterns and support conversations with his LGS care team.
Transcript
I keep a calendar. You know, I see a whole month at a time on a page, and on that calendar, I will mark, you know, how many seizures happened each day.
And then I go back and I color code the days. So like green for good days, red for bad days, and then yellow for medication adjustment days.
And I’m telling you, like Owen’s doctors love that because I bring it in and you can really start to establish a pattern that way.
I know it’s like old school and analog, and it’s probably all sorts of cool apps out there that will do this for you, but a visual is super helpful, especially with the colors.
