Skip to content
Lennox-Gastaut Syndrome News logo
Newsletter
  • About LGS
    Overview
    Causes
    Symptoms
    Diagnosis
    Living with LGS
    Treatment
    • Approved Treatments for Lennox Gastaut Syndrome
    • Experimental Treatments for Lennox Gastaut Syndrome
  • News
  • Community
    Perspectives
    More perspectives
    • Redefining Normal – a Column by Brian Solka
    • Into the Unknown – a Column by Jendi Solka
  • Resources
    Videos
    • Advocate, strategist, partner: Owning your role in LGS care
    Featured Topics
    • ASAP care with LGS: Protecting your child’s future

How to balance LGS advocacy with preserving trust

More videos

Doctor disagreements

Tracking seizures

Seizure control

Treatment options

Bridging gaps

See more videos

Colleen Jendreas explains her methods for advocating for her son and building his LGS care team.

Transcript

I don’t know. I might be one of those, like, “You get more flies with honey” type of person. I have found that being kind and honest really work a lot better than pushing to the point of being aggressive and mean.

Read More

That’s not how I get people to pay attention to my son and take me seriously and get on our team. If I’m going to be just, like, angry and aggressive, that doesn’t work for me.

Might work for others, but I definitely like to approach things just kind of, like, openly, honestly, and friendly. So that’s what I’d recommend, and that’s how I do it.

More videos

Bridging the gaps in shared LGS care
How to ask about new or different LGS treatment options
Balancing seizure control with quality of life in LGS
Bringing hard, objective seizure data to LGS doctor visits
See more videos

  Subscribe to our newsletter

Get regular updates delivered to your inbox.

This field is for validation purposes and should be left unchanged.

Bionews Logo Bionews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: 1-800-936-1363

  • Lennox-Gastaut Syndrome News on Instagram
  • Lennox-Gastaut Syndrome News on Facebook
  • About Us
    • Our Culture
    • Our Communities
    • Leadership
    • Careers
    • Contact Us
  • Explore More
    • Advertising Policy
    • Editorial Policy
    • Corrections Policy
    • Privacy Policy
    • Terms of Service
    • Cookie Settings
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2013-2026 All rights reserved.

Log in

Don't have an account?

Log in

[wppb-login register_url="/register" lostpassword_url="/recover-password" ajax=true]

|

Register

Already have an account?

Register

Create your account by filling in the information below:

[wppb-register redirect_url="/welcome" ajax=true]

By creating an account, you are agreeing to the Privacy Policy and Terms of Service.

Reset Password

[wppb-recover-password ajax=true]